I’ve mentioned before that I’m aiming to raise money for the Rosemere Foundation at the Royal Preston Hospital, but I’ve also decided to add another charity into the mix.
It’s Fanconi Hope. Here’s a little information about what they’re all about:
Fanconi Anaemia is a rare genetic disorder that affects young children leading to bone marrow failure and bone marrow transplantation, with a very high risk of leukaemia and subsequent head & neck cancers.
The Fanconi Hope Charity is a national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
- To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
- To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
- To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.
You can find out more about Fanconi Hope here - http://www.fanconi.org.uk/
I think the Prof is going to join us on a leg (maybe even two if I can twist his arm) and I know that Fanconi Research is close to his heart.
For Rosemere, we’ll be arranging a meeting with them early in 2009 to talk about any specific fundraising goals that they have at the moment. I think it’d be better to raise towards a specific piece of equipment rather than just general funds. Still not sure on how much we’d like to raise in total but it should surely be several thousand pounds.
Even in these hard economic times I hope that people will be able to donate a little (or a lot) to our efforts. All that online fund raising stuff will get set up early in the New Year and we’ll start raising in earnest then.
But for now it’s back on the training bike. It might be Christmas Eve but the training must go on!
Merry Christmas y’all,
-pc.
